Factors promoting positive outcomes in neurodivergence

What is the project about?

At Karolinska Institutet, a research project is currently underway on resilience in neurodevelopmental diversity, i.e. in various conditions related to the functioning and maturation of the nervous system.

In this study, we want to hear your thoughts on the factors that are important for resilience and supporting neurodivergent people to thrive. 

We will capture your thoughts in a one-on-one interview or group interview that will take about 1.5 - 2 hours. 

Resilience is a dynamic process, including individual and environmental factors (such as physical surroundings, social support etc.) that can help people to have a positive life despite challenges. 

The background to the project is that the World Health Organization (WHO) has developed a tool to describe everyday abilities under different conditions. The tool is called the International Classification of Functioning, Disability and Health (ICF). This project aims to develop a specially adapted short version of the ICF for resilience in neurodevelopmental diversity. The idea is that this short version for resilience will create opportunities for both better care and research for neurologically and developmentally different people. For example, healthcare providers could develop more structured ways of identifying and describing the assets that someone has or can improve, which can help them have a better everyday life. One step in developing this short version of the ICF is to map out the factors that you think are important for resilience and for having a successful life.  

If you are:

  1. A neurodivergent individual (i.e., autistic, ADHD, dyslexia, etc.)  OR  a family member (or close person) to a neurodivergent individual, 
  2.   Aged 7 years and older,
  3.  and are interested in being involved in an online interview or focus group.

Please complete this short registration form and we will be in contact. 

For more information about Risk and Resilience in Developmental Diversity – Mental Health (R2D2-MH) project and consortium visit the webpage: https://www.r2d2-mh.eu/

1.
what option best describes you (select all that apply to you):
2.
What is your age? (if you are under 15 years your parent/guardian will need to provide consent)
3.
Would you prefer a one-on-one interview or an interview with a group of people who have a similar background?
4.
What times of the day are you typically available and could take part in an interview?
 8am - 10am10am - 12pm12pm - 2pm2pm - 4pm4pm - 6pm6pm - 8pm
Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
Sunday

What is your email address, we will use this email address to contact you with additional information about the study and to book a time with you:

If you are under the age of 15 years, please also provide a contact email for your caregiver

Privacy statement: The details you provide will only be used for the purposes of contacting you about this project. This information will be handled only by the research team. If, at a later time, you decide that you would not like us to contact you, we will delete your information upon request. Contact: melissa.black@ki.se

 

R2D2-MH has received funding from Horizon Europe [grant agreement no. 101057385], from UK Research and Innovation (UKRI) under the UK government’s Horizon Europe funding guarantee [grant no.10039383] and from the Swiss State Secretariat for Education, Research and Innovation (SERI) under contract number 22.00277.